Tag: medical

  • neither warmth nor depth

    I woke up strapped to the bed by six different apparatus. The last thing I remember is the surgeon greeting me at the swing doors, ‘Welcome to Theatre,” and I said, “Oh! How gracious,’ then, “I’m scared.”

    Of the leashes pegging me out like a goatskin my favourite is the pair of disco moon boots that wrap, white and puffy, loosely around my calves and plug in to a noisy apparatus to inflate and deflate, compressing the muscles as through walking. Getting out of bed is painful. I’ve several holes in my belly and one of them has a tube of blood coming out of it which is there to drain the wound.

    The last time I ate was Wednesday, it’s now Sunday. However we discovered I can still vomit copiously. Had a visit from my mother who sat down beside the bed and said, “Well I’ve been having a very difficult week.” She wanted advice on something uncomfortable in her household arrangements and I gave it. The next day my whole family visited at once, as I thought it would be less stressful to get it over with in the one lump. Mum reached over to hug me and managed to gouge her elbow right into the principle wound on my belly, the first time anyone had touched it. It was so painful I actually screamed. I thought I would black out. When I opened my eyes I found my brother and her two sisters gathered round her patting and soothing, while she cried, because she felt so very terrible about hurting me. When I said, rather bitterly I suppose, ‘Oh, please. Focus on Carol!’ in a bravely wobbling martyred voice Mum said, ‘I’m alright! I’m ok. Focus on Cathoel.’ And my aunt came over on pretext of straightening a blanket to lean in and tell me in a stern undertone, ‘Stop it.’

    I’m thinking of climbing out of bed (takes me a while) and going over to the whiteboard on my wall which has daily updated details for the nurses: I’m going to erase ‘liquid diet’ and put in its place ‘strawberries and champagne cocktails.’ I’m in bed 27, the age rock stars overdose, and I am alive and have survived. I’m on ward number 3D and indeed life is all technicolour this week and in three dimensions.

  • wait what

    When I got there the doctor said, “You know when we call you in at seven in the morning it’s not good.” She had called me in at 7.15am on Friday to give this news. I have cancer. She used words like ‘chemo’ and ‘metastasize’. She emphasised that these are words I may not need to learn. In my head there was only room for three words, the same three words recurring all weekend.

    She gave me the name of a surgeon I’m to meet today, Monday, who will try to cut all the cancer out. She said, “You’ll be reassured to know that everyone’s going to be treating this as the utmost urgent priority.” I sort of half-laughed. “That is not reassuring,” I told her, wryly, and she made a comical face. I am proud of that wryness and that half laugh. Those are my courage.

    She said she thought what they first found might have been inside me maybe a year. She said, best case scenario is I go into surgery this week and the new doctor, a man, cuts all of it out, he gets the lot, and after that I keep getting scanned and checked and tested for the next five years then for the rest of my life I will have to keep an eye on it and keep meeting from time to time with these doctors (“you’ll get sick of the sight of us, I promise you.”) Then there’s some spreadage and there is no cure so we irradiate it or poison it with chemo which doesn’t poison just the cancer but the host as well — me, in my body — and then at the far end is, the scans reveal it’s in your blood or lymph glands or your organs are riddled with it, we are sorry, there is nothing we can do, you have a few months, set your affairs in order.

    Until the first tests come back there is no way of knowing how much cancer is in my body at this stage nor how far it may have spread.

    The call from this doctor’s receptionist came as I walked out of the hospital from seeing Mum. That morning, Thursday four days back, I woke to texts from Mum at 4.30am saying hello I am very very sick and then from my brother at dawn, we are at the hospital with Mum, pneumonia and it’s not looking good. I went straight in to see her and I’ve never seen anyone so sick. She was shivering with fever and delirious and vomiting up coiling tubes of bright yellow foam like a pool noodle, like those batts you put into ceilings for insulation. We thought she was going to die. The doctors seemed to think so, too, and they told us, the family should come. When I came out of my own appointment next morning Mum had turned a sharp corner and by some miracle of resilience was sitting up in bed eating a sandwich. I was thinking what if she dies, what if she really does, what if she is dead already and she is gone and she’ll never know I have this. Instead, Mum seemed so much calmer and stronger and I visited again and made her comfortable in the too-short bed and listened to the doctors and my mother told me a story about her aunt, my great aunt, who died only two months back at 96. This great aunt had cancer, and I never knew. She had it cut out, and recovered to live this long life. Since returning from Africa at the end of 2022 I had been asking when could we drive up to see her. Instead, she died, and the day of her funeral I happened to phone and Mum said, Can’t talk now darling, we’re all in the car on the way to Warwick, and I said, Why, what’s happening in Warwick, and she said, “Auntie Berta’s funeral.” I said why — but why — how come I, and she said, smoothly, your brother put his foot down. He told us, if she goes, I’m not coming. And he’s a pallbearer.

    I don’t know the source of this estrangement and no one can explain it to me. Soon it may be immortal, as far as anything human. I don’t know why my mother’s 84th birthday in November was held at this powerful brother’s house and I was not invited. I had been lured back from Ghana on the promise of the long-overdue reconciliation I had been asking for and working towards for more than a decade. That she let one of her last birthdays be celebrated without me, the whole family gathered just down the road, when I had been gone some twelve years and was actually living under her roof at that stage — I cried for days. And, in an aching gap in the crying I went to my first decent painting class and worked round the fire in my throat on my first decent painting. The boy’s name is Atta Bonye and his wry, thoughtful, sweet and spiced expression speaks to my heart. All I know is we are humans here together and life is turbulent and short. All Ghanaians know we cannot heal nor even address these painful things if the other party does not want them resolved. All we can do is cling to those things which bring life and give health, and try to distance ourselves from toxins, from cruelty in others and the impulse to cruelty if it should surface in ourselves, try to balance painful honesty with life giving kindness, try to be as real and as present as we possibly can, though it cost us everything, as they say in Accra, you have to “happy yourself.”


  • happens so fast

    Mum’s in hospital. Dad’s in hospital. Both in the same hospital and admitted on the same night. He has pneumonia, we think, and they’re waiting for the results of the PSA test on his prostate cancer this morning. If he has a heart attack, he told the doctor, he does not want to be revived. My mother ten minutes after Dad was carted off in the ambulance went downstairs to water the garden, tripped over her own pants leg, and broke her hip. My brother was trying to tend to both of them while they were two beds apart on the emergency ward and when Mum was wheeled off for her Xray, and Dad was wheeled up to the ward, he asked as they passed the doors of the Xray department, can’t we just open the door a crack? And let them say hello to each other.

    The door was opened. They got to see each other and wish each other good luck. Dad’s doctor was doubtful he would make it through the night. Describing my parents saying hello through the Xray department door my brother broke down and sobbed. He kept saying, We need to talk about this as a family, we’re not ready to say goodbye yet! I said, this is very hard what you are doing. I wish I could be there to support you, and them. I’ve been tormented since I heard by the thought of them both being in such pain, and under the same roof, but separated. I said, even though it hurts us, I think it’s Dad’s own decision. It is his life and no one can keep him here if he is suffering. I described my friend who died last month, of euthanasia, when her quality of life became unbearable. Yes, said my brother very slowly. I know it might be very hard for you to do I said, and it’s asking a lot. But if you were able to find it in yourself – when Dad is awake and alert – to provide him with a calm enough conversational space so that he can clearly, plainly express his own wishes for his fate: I think it would be a truly loving service you could offer him. My brother said, I think he’ll want to hang on, for Mum. May 28th will be their fiftieth wedding anniversary. We’d imagined that I was the only one who wouldn’t be there, for that.

  • for you, now that you no longer need it

    My friend has died. She was very courageous and had cancer. She was a photographer, a maker of exquisite works. She was Dutch and chose euthanasia when the pain she was suffering became, after months, too unbearable. Now her partner is left alone to garden.

    She was wise and quiet in her mind, an insightful, shrewd, kind, passionate person. I just adored her. The world since I’ve known her has felt illuminated by her presence. The sense of her presence among us: you know, those so rare people.

    Tonight we are making a chicken curry very slowly and brewing up a panful of chai masala and my kitchen, where my friend and her partner once sat with me, smells of spices. My throat aches for her. I am crossing to the machinery in the next room to play Gurrumul Yunupingu’s song Bapa four times over; finally my companion without a word gets up and sets it to continuous loop. Thinking of the songwriter, who also could have died this week. Thinking on his experience in the Royal Darwin Hospital and of my friend, can she really be gone utterly, and of how we treat each other, can she really just – be gone, thinking of the Aboriginal belief that our soul goes into the soil, into the stones and trees, into the earth where we got born. Sometimes a mother rubs her newborn child in the red dirt, or in the ashes from the fire, to teach its soul – I think – where to come home to. It seems to me a woman who lived all her life in the one civil, intelligently run, beautiful city might be a beneficiary of this cool, loving, compassionate, scientifically realistic and empathic prophecy.

    The dead. Now we outnumber them for the first time it seems to me we must be particularly tender and respectful of the world they have left us, which their bodies have built, which their bones and blood constitute. I miss you, I miss you, I am crying out over the sink for you and you’re gone now and I miss you, I miss your company, your voice and your eyes, your dear creatureliness.